Suffering from pain: Share Your Story

I am embarking on interviewing and writing more posts about those who struggle with the demon of pain, how they manage, what things they do to help themselves live the best way they can. I intend to do about 20 to 30 more interviews and combine them with my earlier posts, look for themes and publish all in a book form.

I am interested in anyone who would consent to a completely anonymous interview for these upcoming posts. If interested or know of someone who might be, please contact me here.

I am looking forward to doing these kinds of posts as they are usually filled with tremendous humanity and, sadly, awful behavior of those with whom pain folks sometimes have to interact.

I look forward to hearing from you.

About left0089

Columnist at American News Report. Pain care activist. Poet, memoirist.
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9 Responses to Suffering from pain: Share Your Story

  1. Jane patients says:

    I live in Washington and was a patient of the Seattle pain center, the lies the drs told re Dr Li and now am being taken off my pain meds because I was a patient od SPC I had to go to the everett clinic and was told by the NP that they sat down and decided that the patients they had to take on were to be funnelled through her and would be taken off their meds no questions asked and I mean no questions, no exam, no doctor, I would love to talk to you about what I believe is going on and it has nothing to do with people over dosing on pain meds, this is genocide by suicide! The 1% wants the money paid for people in pain in their pockets and if these low life’s kill themselves more money for the 1%

    • left0089 says:

      Would you be willing to share your larger story with me for publication here and later in a book? I offer and maintain complete anonymity. Your story makes my blood boil. You can reach me at markmaginn91@gmail.com

      Looking forward to hearing from you.

      Mark

    • left0089 says:

      Jane, my email is markmaginn91@gmail.com I would be grateful if you contacted me as I am interested in your story and it’s the kind of story that needs telling not only to power but to others trapped in the same madness. Please do contact me.

  2. Vicki L says:

    I am a pain sufferer from Fibromyalgia. My pain is mild compared to many others. My experience with pain is more through people around me, my fiance specifically. I have been with him for a number of years. When he first moved in with me he occasionally took Darvon (now unavailable) for his back pain. He was disabled from a bus accident over 20 years ago. The tour bus he was riding on was hit by a drunk driver right under my fiance’s seat. His friend with Cerebral Palsy flew on him (dead weight) as well as 4 other guys which smashed his lower back into the arm rest of the seat. When he stood up, he felt a twinge and could walk. He went home and went to bed as it was an overnight gambling junket he had been on. A few hours later he woke up because he had to go to the bathroom but he couldn’t move his legs. He literally crawled to the bathroom and back to his bed. He was married, had a decent job and lost everything in the next few years due to his injury and inability to work. He has only sporadically over the last 20 years and has been told continually not to work. He has applied for disability only to be denied. He has been denied pain management through the clinic we went to and sent to a Pain Clinic. He takes Oxycodone and Oxycontin. He has had steriod shots in his back which give him no relief. He believes he has lived his life to the best of his ability and many times expresses that he is tired of fighting and believes he would be better off dead. I believe the day will come when he acts on this impulse. Unfortunately pain sufferers become non-people in our society. Our State won’t help you unless you have an income. He keeps being denied. We have been told if he could get his social security/disability they could help with rentals and utilities but unless he has an income they can’t help. This is just a small piece of my reality. Thanks for listening and good luck with your book.

  3. Stefanie Lee Berardi says:

    Mark, I read an article you wrote a few years ago and sent it to my best friend in New York. In that piece, you said that as a person with chronic illness, you have already ‘died a thousand deaths’. He and I quoted you many, many times as we supported each other through our chronic illnesses. In May of this year, this phrase was spoken again at his eulogy. If you are interested in talking to me about this, please feel free to contact me.

  4. Mike kleshinski says:

    Hi. I’m a month out of getting a scs. I’m on the fence. I’ve weened down in the last 90 days from 200 mg of morphine to 60mg. I feel alive again. It’s been 14 years since cancer. I’ve had 14 blood clots too. I’d love to compare notes with someone who’s been in this boat before. I’m not sold on the scs or living on morphine.

  5. The most common reason why people complain about pain is because of life and living.
    Life pummels the mind, mental, spirit, soul in the body everyday of your life.
    It turns out that there is a critical scientific fact about the muscle system which is overlooked from the beginning of time to about the 1980s.

    David Simon’s M.D. noted that the healthcare system completely ignore the contributions of the muscle system to disease. Fast-forward to today and no one has picked up on this critical, commonsense, logical, and reasonable scientific biological fact.

    Muscles work for living and get beat up, torn, ripped and scarred. These scars are the exact pathology of pain and misery. It’s a requirement that we stretch everyday to pull out the kinks so that mother nature can reach those scars to thoroughly a complete the heal them. Active intramuscular microscopic scars is the most common complaint seen in a doctors office.

    Muscles demand daily doses of corrective and restorative physical therapy = tender loving care, that everyone does at home or you will end up with a TLC deficit.
    TLC deficit over months years and decades will cause the muscles to fail to function in your favor.
    If one day’s worth of TLC will restore you back to readiness then fibromyalgia has accumulated the debt of 3- 5000.
    Complex regional pain syndrome have reached a depth of >10,000.
    folks who want to kill themselves from abject pain and misery have a debt that is >>15,000.
    Muscle failure is limping, ache, stiffness, weakness, I’ve fallen and I can’t get up,”ouch don’t push their it hurts”fibromyalgia, a.k.a. hypochondria.

    The best place to see professional level doses of therapeutic hands-on physical therapy is in the locker room of the NFL the NBA elite runners and cyclists.

    About 20 years ago the healthcare system literally eradicated most all aspects of therapies which will restore muscles back to a ready.

    Here is a nutshell view of a treatment RX. Not to be piecemeal or dolled out in dollops. Full forced like a deadly cancer or pneumonia in the ICU

    These scars can only be healed from the inside with help from us in the form of heat, stretching, massage, range of motion, pulling, kneading and needling. Muscles can only heal by the natural forces from within by activation Wound Repair when we apply an overwhelming countering force as per Newton’s laws of motion and physics.
    Muscle, myofascial pain and dysfunction have to be dealt with on a daily basis. Prevention is the key as per Doctor Rodrigues. I have to take full responsibility to do my part to activate natural healing from the inside is the only way muscle microscopic scars can heal. My responsibility in prevention therapy, self-care, awareness, and contributions is summarized in this mnemonic, SSRMD+LY+SPA+Yoga on a daily basis.

    Here is a protocol RX:
    1. Hands-on options Massage CPT: 97124. @ 2-3 x per week.
    2. Joint Manipulations, Chiropractic and Osteopathic CPT: 98925 and 98926. @ 2-3 x per week.
    3. Dry needling CPT: physical therapy codes @ 2-3 x per week.
    4. Thin intramuscular needling choices @ 2-3 x per week.
    5. Acupuncture CPT 97810. @ 2-3 x per week.
    6. Hypodermic intramuscular needling options @ 1-2 x per week
    7. Travell/Rachlin Trigger Point Injections CPT: 20552 and 20553. @ 1-2 x per week.
    8. Tendon and Ligament Injections CPT 20550 and 20551. @ 1-2 x per week.
    9. IM doses of magnesium sulfate; 1-4 grams per visit.

    Muscle Failure is the most deadliest treatable dis-ease of all true diseases.